100,000 invited to post their genomes online in the name of science
A hundred thousand British volunteers could have their genetic information available to anyone in the world. Some scientists warn the Personal Genome Project may be a step too far for confidentiality.
The project is US-based and allows people to find out more about their genetic profiles, plus contribute to advances in medical science. Volunteers from America and Canada have already joined the project.
To participate, people have to be at least 18 years old and understand the risks and benefits when they apply online. They fill out a detailed health history and complete a 19-page consent form.
They will later get their genome analysis and have a four-week "cooling off" period before deciding if they want their data to go online, Reuters reported.
Discovering the role of the genetic code may help to battle complex diseases like cancer, or discover why some people have special traits like perfect musical pitch, according to Stephan Beck, professor of medical genomics at the UCL Cancer Institute and director of the British project.
The project aims to sequence 50 peoples genomes, the 3 billion chemical pairings that make up human DNA, in the first year of the project.
The volunteers will be warned of possible implications, as there are a few challenges that the project faces, and the main one is ethical.
The genome gives a persons entire genetic information, and revealing the data could also disclose the presence of yet undetected illnesses or elevated risks of developing conditions like Alzheimers.
Another controversy is that an open-access DNA database could trigger fraudulent use of peoples information.
Scientists are also cautious about the project.
"GeneWatch UKs view is that people should think twice before agreeing to share their genome openly. Remember your DNA contains a unique genetic code which can be used to track you and identify your relatives. Stored online it will be accessible to police, security and border agencies based in any country," Helen Wallace, of GeneWatch British non-profit group specializing in genetics, told The Guardian.
Read the full article at: rt.com
Those volunteering will be warned about the implications for their own privacy and that of their families, according to Stephan Beck, professor of medical genomics at the UCL Cancer Institute and director of the British project.
To enroll, participants will have to be aged at least 18 and pass an online exam to check they understand the risks and benefits. After getting an analysis of their genome, they will also have a four-week "cooling off" period before deciding whether they want their data to go online.
Since the first human-genome map was unveiled in 2000, some 25,000 people around the world have had their genomes sequenced - but just a fraction of this genetic information is publicly available for all scientists to scrutinize.
In the United States, Church has signed up some 3,000 volunteers for his open-access project, with a few hundred more in Canada, although only around 200 full genomes have yet been sequenced.
He predicted genome sequencing will speed up as the cost continues to fall dramatically - it has come down from $1 billion 20 years ago to a few thousand dollars today.
READ: Oops: Widespread Human DNA Contamination Seen in Genome Databases
AND: Government Genome Project to Sequence DNA of All US Babies at Birth
For sale: Your most intimate secrets... thanks to the national NHS database
Meet SIBIOS: Argentinas Massive, Orwellian Biometric Database
Warrantless DNA Testing: Why A National DNA Database Is On The Horizon
Database Your Face: Drones to Employ Facial Recognition, Ending Anonymity
Creating a Surveillance and DNA Database for Every American . . . From the Cradle to the Grave
FBI Wants a Database of Your Tattoos
Personal Genomes Could Soon Be Public Information
Latest News from our Front Page
IRS Drops Attack For Six Years â No Evidence of Jurisdiction
A big congrats to a friend Iâve been working with for several years, he stood up to the predators commonly called the âIRSâ and they dropped their attack. Thanks also for providing me with the proof below.
The criminals called the âIRSâ initiated an attack claiming my friend was required to file six tax returns, or explain how he made ...
Into Eternity - Finland's 100,000 Year Massive Underground Spent Nuclear Fuel Program
Into Eternity is a documentary about a deep geological repository for nuclear waste. The concept of long-term underground storage for radioactive waste has been explored since the 1950s. The inner part of the Russian doll-like storage canisters is to be composed of copper. Hence in the case of Onkalo it is tightly linked to experiments on copper corrosion in running ...
SPLC Accuses Oath Keepers of Inciting âArmed Confrontationâ Over Sugar Pine Mine
The Southern Poverty Law Center has accused Oath Keepers of inciting an armed confrontation with BLM authorities over the Sugar Pine Mine dispute in Oregon, despite the fact that the organization has explicitly stated that it is not promoting armed confrontation with the feds.
In an article provocatively posted on the organizationâs âHatewatchâ section entitled Oath Keepers Descend Upon Oregon with ...
PayPal Asserts Copyright Ownership Over All Intellectual Property of its Users
In an alarming new update to its user agreement released this week, PayPal has announced that it will assert copyright ownership over all intellectual property of anyone who uses its payment services.
The update comes in the aftermath of the announcement that eBay and PayPal will split apart into two separate companies.
Under the heading âIntellectual Property,â PayPal announces that it is ...
Straight pride fliers removed from YSU campus
Leaders with the Student Government Association at Youngstown State University said they decided to act quickly this week when posters showed up on campus promoting âStraight Prideâ week next month.
The posters contained profanity, which our station has blurred for viewers. The posters promote the event as a way of not showing the differences between students.
Campus leaders said while they believe ...
|More News » |