State agrees to destroy controversial infant blood samples
2009-12-27 0:00

By Martin Bartlett | KVUE.com


The Texas Department of State Health services has about four months to destroy blood samples taken and stored without permission from millions of babies.



State law allows the department to collect those blood samples for routine disease testing, but the state's been hanging on to millions of blood samples since the testing began in 2002.

Dad Michael Neff says blood samples taken from his two daughters should have been destroyed.
He fears the state might have used those blood samples in research projects or sold them to insurance companies.

“I don't think my kid's DNA should be out there, and if it is it should be mine and their mother's decision,” Neff said.

The Department of State Health Services now agrees with Neff’s position.

They've settled a lawsuit filed by the Texas Civil Rights Project over the samples which the state was keeping without getting permission from parents.

"When they do this secretly it raises the specter that their motives aren't pure,” said Texas Civil Rights Project attorney Jim Harrington

As a result of the lawsuit, he explained, samples taken before May 27, 2009, will be destroyed by mid-March 2010.

The state has also agreed to post online a list of any research projects in which those blood samples were used.

The state will also post information about the program on its website in English, Spanish and Vietnamese.

A state law which went into effect over the summer allows parents of children born since may of this year to tell the state not to keep the data on their children.

The state says it will continue to collect the date for routine testing and destroy them once those tests are done.

"We have no problem with that, there is a legitimate state interest in that it can be beneficial -- there is no doubt about that,” Harrington said.

The Department of State Health Services declined KVUE’s request for an on-camera interview.

They e-mailed a statement to us this afternoon saying that they'd comply with settlement and destroy those samples.

“DSHS believes settling this lawsuit is in the best interest of this program’s core mission to screen all newborn babies in Texas for life-threatening disorders. Newborn screening saves children’s lives, and settling this lawsuit allows us to continue operating this critical program,” the statement said.

“DSHS is complying with all the requirements of that legislation, including the provision allowing parents to have blood spots from their infants destroyed rather than stored.”

Article from:
As a result of the lawsuit, he explained, samples taken before May 27, 2009, will be destroyed by mid-March 2010.

The state has also agreed to post online a list of any research projects in which those blood samples were used.

The state will also post information about the program on its website in English, Spanish and Vietnamese.

A state law which went into effect over the summer allows parents of children born since may of this year to tell the state not to keep the data on their children.

The state says it will continue to collect the date for routine testing and destroy them once those tests are done.

"We have no problem with that, there is a legitimate state interest in that it can be beneficial -- there is no doubt about that,” Harrington said.

The Department of State Health Services declined KVUE’s request for an on-camera interview.

They e-mailed a statement to us this afternoon saying that they'd comply with settlement and destroy those samples.

“DSHS believes settling this lawsuit is in the best interest of this program’s core mission to screen all newborn babies in Texas for life-threatening disorders. Newborn screening saves children’s lives, and settling this lawsuit allows us to continue operating this critical program,” the statement said.

“DSHS is complying with all the requirements of that legislation, including the provision allowing parents to have blood spots from their infants destroyed rather than stored.”

Article from:
KVUE.com



Related Articles
DNA of one-year-old baby has been stored on Government's database
Police say taking blood samples will help curb drunk driving
Calls to jail doctor who cloned dead girl Cady's blood
Politicians and celebrities granted permission to keep their names off child database
DNA database 'breach of rights'
DNA database plans for 10-year-olds who 'could become criminals'
Criminal DNA databases get a constitutional stamp of approval
Is your baby’s blood in a DNA database?
All your genes are belong to us


Latest News from our Front Page

Viking Heathen Origin of Horse Meat Taboo
2015-04-21 4:07
YouTube description: The recent horse meat scandal involving Tescos burgers, Ikea meatballs, Findus lasagne and Taco Bell has got people wondering why the English don't eat horses. I covered this subject in my recent dissertation. The answer is to do with paganism. The Catholic church realised that eating horse meat was connected to pagan rites in the North of Europe, ...
Generation Identitaire - Declaration of War
2015-04-21 2:50
We are Generation Identitaire. We are the generation who get killed for glancing at the wrong person, for refusing someone a cigarette, or having an "attitude" that annoys someone. We are the generation of ethnic fracture, total failure of coexistence, and forced mixing of the races. We are the generation doubly punished: Condemned to pay into a social system so ...
No Jab, No Pay reforms: Religious exemptions for vaccination dumped
2015-04-20 20:03
Religious exemptions for childhood vaccinations will be scrapped to toughen Australia’s new “no jab, no pay’’ laws stripping welfare from parents who refuse to vaccinate their children. Social Services Minister Scott Morrison revealed he is dumping the last remaining exemption on the books after holding talks with religious leaders. Just a week after The Sunday Telegraph revealed Mr Morrison was scrapping exemptions ...
Inside David Lynch: An Esoteric Guide to Twin Peaks
2015-04-20 18:24
‘I learned that just beneath the surface there’s another world, and still different worlds as you dig deeper.’ – David Lynch If you’ve ever sensed the flimsy, thin veneer of what parades itself as the good ole US of A, and felt a bit like you’ve been sold a fake, then David Lynch’s Twin Peaks is a series you must see. ...
Third-gender toilet sign – now a reality in Sweden
2015-04-20 18:29
If you don’t identify yourself as a man, a woman or are officially handicapped — where should you go to relieve yourself? In Sweden, the social justice warriors have solved the problem by inventing a third-gender toilet sign. A couple of years ago, the Swedish language was introduced to a new personal pronoun, “hen“, to replace gender specific hon (she) and ...
More News »