Matthew and Michael Clark Are Aging Backwards
2012 11 27

By Piper Weiss | HealthyLiving

By the looks of their home, Tony and Christine Clark are raising two rambunctious 7-year-old boys. Model train tracks and Monopoly pieces are scattered on tables and cartoons flicker on the TV set.

But the Clarks’ two sons are grown men who share only the same interests and emotional fluctuations of little boys. Like the character portrayed by Brad Pitt in the 2008 film "The Curious Case of Benjamin Buttons," Matthew, 39, and Michael, 42, are aging backwards.


Diagnosed with a terminal form of leukodystrophy, one of a group of extremely rare genetic disorders that attack the Myelin, or white matter, in the nervous system, spinal cord, and brain. In the Clarks’ case, the condition has not only eroded their physical capacities, but their emotional and mental states as well.
Only six years ago, both brothers were holding down jobs and growing their families. Today, they spend their days in the care of their parents, both in their sixties, playing with Mr. Potato Head, fighting over Monopoly, and in rare lucid moments, struggling to understand why their lives have changed so dramatically.

Before the Clark Brothers were diagnosed, they were living independent lives. Michael served in the Royal Air Force and later became a cabinet maker. Matthew worked in a factory and was raising a teenage daughter. Tony and Christine, meanwhile, had retired and moved from the UK to Spain. Then in 2007, both of their sons fell off the radar. They stopped returning their parents’ calls and texts, and as the Clark brothers’ conditions developed, their lives fell apart.

Michael surfaced in a soup kitchen, and was referred to medical experts by social workers. After an MRI scan, he was diagnosed with the incurable degenerative disorder. Soon after Matthew received the same news. In the U.S. alone, about 1 in 40,000 children are born with a form of the neurodegenerative disease, according to Dr. William Kintner, President of the United Leukodystrophy Foundation. While some forms of the disorder are potentially treatable if discovered in the earliest stages and not all cause an emotional regression, the brothers are unlikely to be cured. "It’s very difficult to do anything once progression has occurred," Dr. Kintner tells Yahoo! Shine.

[...]


Read the full article at: yahoo.com

A preview for the British documentary on the Clark Brothers airing on the UK’s Channel 4.







Related Articles


Latest News from our Front Page

UK hospital accused of selling body parts for booze
2014 07 31
A leading cancer hospital is to be investigated following allegations that one of its staff members exchanged human body samples for whisky and cash. The calls to investigate Christies NHS foundation trust came after the accusation was made by an anonymous whistleblower, prompting British MP Rosie Cooper to contact the watchdog, the Human Tissue Authority (HTA), the Manchester Evening News reports. British ...
15 dead, over 220 injured as multiple gas explosions hit Taiwan city
2014 07 31
Several blasts have ripped through Kaohsiung, a city in south-western Taiwan, killing 15, injuring over 220 and overturning the cars in the street, the Fire Agency said. The cause is thought to be gas leaks in the sewage system. The number of those injured is expected to rise, the Fire Department said. Many were also taken to schools across the city ...
TYPOGRAPHICAL ERROR on front page of alleged U.S. criteria for terrorist list
2014 07 31
We highlighted the recent report from Glenn Greenwald’s site, The Intercept, about the United States administration’s ’Terror Watch List’, and how "a 166-page document issued last year by the National Counterterrorism Center, spells out the government’s secret rules for putting individuals on its main terrorist database". Read: BLACKLISTED: The Secret Government Rulebook For Labeling You a Terrorist A reader with a sharp ...
Why is the State so obsessed by, and careless with, deadly pathogens?
2014 07 31
Earlier this month, we ran a report on the CDC anthrax blunder. As if that weren’t bad enough, there have been additional exposures since we posted that report. This time, it involved the shipment of live, highly contagious, and deadly H5N1 avian influenza samples. As previously reported, as many as 841 scientists and staff members at a US Centers for Disease ...
‘Catastrophic’: Hedge fund billionaire Paul Singer warns of EMP
2014 07 31
Imminent: ‘Only a matter of time’ until entire electric grid destroyed by natural or man-made event… Billionaire hedge fund manager Paul Singer is warning investors – and more broadly, lawmakers and leaders – about the potential destructive power of an electromagnetic pulse, or EMP, which could be triggered by solar events or artificially, via blasts in the atmosphere. According to Singer, research ...
More News »