Matthew and Michael Clark Are Aging Backwards
2012 11 27

By Piper Weiss | HealthyLiving

By the looks of their home, Tony and Christine Clark are raising two rambunctious 7-year-old boys. Model train tracks and Monopoly pieces are scattered on tables and cartoons flicker on the TV set.

But the Clarks’ two sons are grown men who share only the same interests and emotional fluctuations of little boys. Like the character portrayed by Brad Pitt in the 2008 film "The Curious Case of Benjamin Buttons," Matthew, 39, and Michael, 42, are aging backwards.


Diagnosed with a terminal form of leukodystrophy, one of a group of extremely rare genetic disorders that attack the Myelin, or white matter, in the nervous system, spinal cord, and brain. In the Clarks’ case, the condition has not only eroded their physical capacities, but their emotional and mental states as well.
Only six years ago, both brothers were holding down jobs and growing their families. Today, they spend their days in the care of their parents, both in their sixties, playing with Mr. Potato Head, fighting over Monopoly, and in rare lucid moments, struggling to understand why their lives have changed so dramatically.

Before the Clark Brothers were diagnosed, they were living independent lives. Michael served in the Royal Air Force and later became a cabinet maker. Matthew worked in a factory and was raising a teenage daughter. Tony and Christine, meanwhile, had retired and moved from the UK to Spain. Then in 2007, both of their sons fell off the radar. They stopped returning their parents’ calls and texts, and as the Clark brothers’ conditions developed, their lives fell apart.

Michael surfaced in a soup kitchen, and was referred to medical experts by social workers. After an MRI scan, he was diagnosed with the incurable degenerative disorder. Soon after Matthew received the same news. In the U.S. alone, about 1 in 40,000 children are born with a form of the neurodegenerative disease, according to Dr. William Kintner, President of the United Leukodystrophy Foundation. While some forms of the disorder are potentially treatable if discovered in the earliest stages and not all cause an emotional regression, the brothers are unlikely to be cured. "It’s very difficult to do anything once progression has occurred," Dr. Kintner tells Yahoo! Shine.

[...]


Read the full article at: yahoo.com

A preview for the British documentary on the Clark Brothers airing on the UK’s Channel 4.







Related Articles


Latest News from our Front Page

Pre-historic tokens used in conjunction with cuneiform
2014 07 22
An archaeological dig in southeast Turkey has uncovered a large number of clay tokens that were used as records of trade until the advent of writing, or so it had been believed. But a new find of tokens, dates from a time when writing was commonplace – thousands of years after it was previously assumed this technology had become obsolete. Researchers ...
Are immigration opponents Nazis?
2014 07 22
It seems the usual suspects are calling anyone who opposes unlimited immigration to be a "Nazi". The Left seems to be in constant fear of "Nazis" that lurk in public policy discussions and I assume under their beds. If you oppose any Leftist position, you are a.... take a wild guess...wait for it.... a NAZI! Tim Wise recently went ...
What Did US Spy Satellites See in Ukraine?
2014 07 22
Exclusive: The U.S. media’s Ukraine bias has been obvious, siding with the Kiev regime and bashing ethnic Russian rebels and Russia’s President Putin. But now – with the scramble to blame Putin for the Malaysia Airlines shoot-down – the shoddy journalism has grown truly dangerous, says Robert Parry. In the heat of the U.S. media’s latest war hysteria – rushing to ...
Oh, Great: Robots Are Set to Conduct National Security Clearance Interviews
2014 07 22
Advancing a career in the US government might soon require an interview with a computer-generated head who wants to know about that time you took ketamine. Psychologists at the National Center for Credibility Assessment (NCCA) are developing an interview system that uses a responsive on-screen avatar for the first stage of the national security clearance process. Initial screening for a variety ...
Is Anything on the Internet Real Anymore?
2014 07 22
Is there anybody…out there? I promise I’m a real person asking this question and typing this article…but beyond that, I can’t promise much else about anything you or I see on the Internet. This article on ZDNet, “GCHQ’s dark arts: Leaked documents reveal online manipulation, Facebook, YouTube snooping,” confirms — beyond a shadow of any possible doubt — that a barrage of ...
More News »