By the looks of their home, Tony and Christine Clark are raising two rambunctious 7-year-old boys. Model train tracks and Monopoly pieces are scattered on tables and cartoons flicker on the TV set.
But the Clarks’ two sons are grown men who share only the same interests and emotional fluctuations of little boys. Like the character portrayed by Brad Pitt in the 2008 film "The Curious Case of Benjamin Buttons," Matthew, 39, and Michael, 42, are aging backwards.
Diagnosed with a terminal form of leukodystrophy, one of a group of extremely rare genetic disorders that attack the Myelin, or white matter, in the nervous system, spinal cord, and brain. In the Clarks’ case, the condition has not only eroded their physical capacities, but their emotional and mental states as well.
Only six years ago, both brothers were holding down jobs and growing their families. Today, they spend their days in the care of their parents, both in their sixties, playing with Mr. Potato Head, fighting over Monopoly, and in rare lucid moments, struggling to understand why their lives have changed so dramatically.
Before the Clark Brothers were diagnosed, they were living independent lives. Michael served in the Royal Air Force and later became a cabinet maker. Matthew worked in a factory and was raising a teenage daughter. Tony and Christine, meanwhile, had retired and moved from the UK to Spain. Then in 2007, both of their sons fell off the radar. They stopped returning their parents’ calls and texts, and as the Clark brothers’ conditions developed, their lives fell apart.
Michael surfaced in a soup kitchen, and was referred to medical experts by social workers. After an MRI scan, he was diagnosed with the incurable degenerative disorder. Soon after Matthew received the same news. In the U.S. alone, about 1 in 40,000 children are born with a form of the neurodegenerative disease, according to Dr. William Kintner, President of the United Leukodystrophy Foundation. While some forms of the disorder are potentially treatable if discovered in the earliest stages and not all cause an emotional regression, the brothers are unlikely to be cured. "It’s very difficult to do anything once progression has occurred," Dr. Kintner tells Yahoo! Shine.
Kansas City Jewish Community Center shooter: “I was an FBI Informant” 2014 04 24 Kansas City Jewish Community Center shooter: “I was an FBI Informant”
…… Which is EXACTLY how we called it when this story broke a few weeks back. We also mentioned that the SPLC, just discarded from the FBI “hate” website… Would be the prime benefactor.
Ex-KKK Leader Was Given a New Identity Years Before Shooting
Glenn Miller Claims He Was an FBI Informant
Meet AISight – The Artificial Intelligence Software Being Installed on CCTV Networks Globally 2014 04 24 If you thought that CCTV cameras tracking your every move in public was bad enough, you’re going to just love AISight (pronounced “eyesight” of course). The invention of a Houston, Texas based company called BRS Labs (which stands for Behavioral Recognition Systems) is headed by former secret service special agent John Frazzini, and this Orwellian surveillance platform brings artificial intelligence ...
Biofuel Made From Corn Waste Less ‘Green’ Than Gasoline 2014 04 24 Biofuel created from corn waste may not be the clean, eco-friendly oil alternative the United States government is hoping for. A new study has found that fuel generated from harvested corn leftovers creates more greenhouse gases than conventional gasoline — at least in the short term.
The fuel under study, called cellulosic ethanol, has been touted in recent years as a ...
Swedes open coffin of 850-year-old king 2014 04 24
Scientists pried open the 850-year-old casket of King Erik the Holy on Wednesday, hoping to find out more about the king, his crown, and his eating habits.
"This was a very special occasion, especially considering the importance of Saint Erik religiously in Sweden," Uppsala Cathedral Chaplain Lars Åstrand told The Local.
The casket contained the bones of King ...
John Kerry and the Pope set to face off with Jewish Knight Templars on the Temple Mount 2014 04 24
This is the week that supposedly spells the end of the peace process or its end. My money is on a continuation that has no real substance or direction.
What’s the alternative?
With Passover and Easter over, Secretary Kerry can return to the Middle East crisis. This, after dealing so successfully with crisis in the Ukraine. [Is the author joking? - RIC]